Epilepsy Resource Connection


Check Out ERC's School Alert Program
Senior Epilepsy
Free Informational Training (Flyer)


Epilepsy Resource Connection joined The Arc in 1996.  The Arc was very receptive to ERC since nearly 35% of people with mental retardation also have seizures.  

erc serves persons with epilepsy/seizure disorders, their families, and their communities through a variety of programs.  ERC strives to provide support and counsel for individuals with epilepsy/seizure disorders through education and training that will enable them to acheive their highest level of independence and quality of life.  ERC serves many people offering information and referral services.  There is an active monthly support for adults.  

erc educates Wichita area youth about seizure disorders with the School Alert Program.  It targets Wichita area schools using a puppet show to teach children to be tolerant of and to accept peers who have seizures.  In addition, ERC offers telephone support and individual counseling for parents of children with seizure disorders.

erc promotes the development of facilities and services for effective treatment and habilitation.  Efforts are directed at assisting individuals with epilepsy and their families achieve their highest level of independence and quality of life.
ERC Program Information and Links
ERC Newsletters
Epilepsy Is Not A Single Disorder
Epilepsy is not a single disorder, but covers a wide spectrum of problems characterized by unprovoked, recurring seizures that disrupt normal neurological functions. Epileptic seizures occur when a group of nerve cells in the brain (neurons) become activated simultaneously, emitting sudden and excessive bursts of electrical energy. This hyperactivity of neurons can occur in various locations in the brain and, depending on the location, have a wide range of effects on the sufferer from brief moments of confusion to minor spasms to loss of consciousness.

Epilepsy is more common than many realize; 2.5 million Americans (2% of the population) have epilepsy. Epilepsy costs the U.S. $12.5 billion each year. It is estimated that approximately 54,000 Kansans have seizure disorders.  

Epilepsy is the world’s most common and serious neurological disorder. Yet many patients suffer even more from public attitudes—social ostracism, job loss, disruption to personal relationships, & other prejudices—than from their seizures.

In 1993, the Centers for Disease Control & Prevention (CDC) recognized epilepsy as a public health concern; the CDC called for an expansion in interventions to support people with epilepsy and their families in their communities.

Once thought of as only a childhood disease, the highest incidence of epilepsy is now found in the elderly population.  Currently, 1 in 50 new cases epilepsy are with seniors. Whereas, 5 – 7 children per 1000 have epilepsy. Epilepsy is as likely to begin when a person is in their 60s, 70s and 80s, as it is during the first ten years of life.  300,000 American senior citizens have epilepsy.

Stigma remains as a major barrier to effective awareness and treatments.  Limited access to care reduces quality of life for individuals with epilepsy.

Until a cure is found, advocacy is the key to making certain that every Kansan who has epilepsy has the full range of treatment options available to them.
Contact

Matthew K. Fullerton
Epilepsy Services Coordinator
2919 W. 2nd Street
Wichita, KS 67203-5319
(316) 943-2453/Fax (316) 943-3292
erc@arc-sedgwickcounty.org

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